'If you build it, they will come…to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal'.

'If you build it, they will come…to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal'.

Fuente:Bmj Health & Care Informatics

Extracto: After 19.5 months, the 'Request Ethics Consultation' functionality on the patient portal was suspended. Developing resources on the role of Ethics for our patients and caregivers remains a priority.

Claves:Health Literacy, Medical Informatics, Patient Involvement, Patient-Centered Care

Cita:BMJ Health Care Inform 2024 Apr 27; 31 (1)

Autor/es:Blackler, Liz (a)
Scharf, Amy E (b)

institución:(a) Ethics Committee, Memorial Sloan Kettering Cancer Center, New York, New York, USA blacklel@mskcc.org.
(b) Ethics Committee, Memorial Sloan Kettering Cancer Center, New York, New York, USA.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1136/bmjhci-2023-100988

Frequency of self-directed dying in the Netherlands: research protocol of a cross-sectional mixed-methods study.

Frequency of self-directed dying in the Netherlands: research protocol of a cross-sectional mixed-methods study.

Fuente:Bmj Open

Tipo de trabajo:Revisión

Extracto: TRIAL REGISTRATION NUMBER: NCT06186791.

Claves:Decision Making, PUBLIC HEALTH, QUALITATIVE RESEARCH, Surveys and Questionnaires

Cita:BMJ Open 2024 Apr 29; 14 (4) : e085240.

Autor/es:Bosma, Fenne (a)
Stoppelenburg, Arianne (b)

institución:(a) Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands f.bosma@erasmusmc.nl.
(b) Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1136/bmjopen-2024-085240

Regulatory and Ethical Considerations on Artificial Intelligence for Occupational Medicine.

Regulatory and Ethical Considerations on Artificial Intelligence for Occupational Medicine.

Fuente:La Medicina del Lavoro

Extracto: By advocating for a comprehensive review of the International Commission on Occupational Health ICOH code of Ethics, we can ensure responsible medical AI deployment, safeguarding the well-being of workers amidst the transformative effects of automation in healthcare.

Cita:Med Lav 2024 Apr 24; 115 (2) : e2024013.

Autor/es:Baldassarre, Antonio (a)
Padovan, Martina (b)

institución:(a) Department of Experimental and Clinical Medicine, University of Florence.
(b) Preventive Medicine, Tuscany North-West Health Local Unit.

Formato:Informe virtual

Idioma:Inglés

País de fuente:Italia

Sitio web:http://dx.doi.org/10.23749/mdl.v115i2.15881

Definition of Implanted Neurological Device Abandonment

Definition of Implanted Neurological Device Abandonment

Fuente:Jama Network Open

Tipo de trabajo:Revisión sistemática

Extracto: AND RELEVANCE: This study's consensus statement suggests that the definition for neurological device abandonment should entail failure to provide fundamental aspects of patient consent; fulfill reasonable responsibility for medical, technical, or financial support prior to the end of the device's labeled lifetime; and address any or all immediate needs that may result in safety concerns or device ineffectiveness and that the definition of abandonment associated with the failure of a research trial should be contingent on specific circumstances.

Cita:JAMA Netw Open 2024 Apr 1; 7 (4) : e248654.

Autor/es:Okun, Michael S (a)
Marjenin, Timothy (b)

institución:(a) Department of Neurology, Norman Fixel Institute for Neurological Diseases, Gainesville, Florida.
(b) Department of Neurosurgery, Norman Fixel Institute for Neurological Diseases, Gainesville, Florida.

Formato:Informe virtual

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1001/jamanetworkopen.2024.8654

Sustainability outcomes and policy implications: Evaluating China's "old urban neighborhood renewal" experiment.

Sustainability outcomes and policy implications: Evaluating China's "old urban neighborhood renewal" experiment.

Fuente:Plos One

Extracto: Besides actionable recommendations for applied scholarship and policymaking in China, we provide insight into how the OUNR/SCD initiatives may broadly inform worldwide urban regeneration practices through project and policy experimentations that build adaptive capacity.

Cita:PLoS One 2024; 19 (4) : e0301380.

Autor/es:Wang, Rui (a)
Wu, Hong (b)

institución:(a) School of Art and Design, Wuhan University of Technology, Wuhan, Hubei Province, China.
(b) Department of Landscape Architecture, The Pennsylvania State University, University Park, Pennsylvania, United States of America.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1371/journal.pone.0301380

Cost analysis for initiating an integrated package of essential non-communicable disease interventions (PEN-Plus) in Kondoa District Hospital, Tanzania: a time-driven activity-based costing (TDABC) study protocol.

Cost analysis for initiating an integrated package of essential non-communicable disease interventions (PEN-Plus) in Kondoa District Hospital, Tanzania: a time-driven activity-based costing (TDABC) study protocol.

Fuente:Bmj Open

Tipo de trabajo:Revisión

Extracto: The findings will be published in peer-reviewed journals for use by the academic community, researchers and health practitioners.

Claves:Cardiovascular Disease, DIABETES & ENDOCRINOLOGY, HEALTH ECONOMICS, PUBLIC HEALTH, Primary Healthcare

Cita:BMJ Open 2024 May 1; 14 (5) : e080510.

Autor/es:Ndumwa, Harrieth Peter (a)
Mori, Amani Thomas (b)

institución:(a) Centre for International Health, Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway harrieth.peter@gmail.com.
(b) School of Public Health and Social Sciences, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1136/bmjopen-2023-080510

Why We Should Reexamine the "Golden Age" of Antibiotics in Social Context.

Why We Should Reexamine the "Golden Age" of Antibiotics in Social Context.

Fuente:Ama Journal of Ethics

Extracto: This article advances a more contextualized view of how science and technology policy has shaped antibiotic supply chains over many years, emphasizing how shifting the story we tell about past successes is central to securing a reliable antibiotic supply chain in the future.

Cita:AMA J Ethics 2024 May 1; 26 (5) : E418-428.

Autor/es:This article advances a more contextualized view of how science and technology policy has shaped antibiotic supply chains over many years, emphasizing how shifting the story we tell about past successes is central to securing a reliable antibiotic supply chain in the future.

institución:This article advances a more contextualized view of how science and technology policy has shaped antibiotic supply chains over many years, emphasizing how shifting the story we tell about past successes is central to securing a reliable antibiotic supply chain in the future.

Formato:Informe virtual

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1001/amajethics.2024.418

Uptown Squirrel Does Not Eat That.

Fuente:Ama Journal of Ethics

Extracto: Possible points of focus for bioethics as a field are related to antimicrobial resistance and stewardship.

Cita:AMA J Ethics 2024 May 1; 26 (5) : E429-433.

Autor/es:Possible points of focus for bioethics as a field are related to antimicrobial resistance and stewardship.

institución:Possible points of focus for bioethics as a field are related to antimicrobial resistance and stewardship.

Formato:Informe virtual

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1001/amajethics.2024.429

Ethics support for ethics support: the development of the Confidentiality Compass for dealing with moral challenges concerning (breaching) confidentiality in moral case deliberation.

Ethics support for ethics support: the development of the Confidentiality Compass for dealing with moral challenges concerning (breaching) confidentiality in moral case deliberation.

Fuente:Bmc Medical Ethics

Tipo de trabajo:Orientaciones y guía

Extracto: This paper concludes with providing some lessons-learned related to developing ethics support tools and some reflections on issues of quality and normativity of ethics support tools.

Claves:Breaching confidentiality, Confidentiality, Development process, Ethics support tools, Moral case deliberation

Cita:BMC Med Ethics 2024 May 3; 25 (1) : 49.

Autor/es:Ligtenberg, Wieke (a)
Stolper, Margreet (b)

institución:(a) Department Ethics, Law & Humanities, Amsterdam UMC, Amsterdam, The Netherlands. w.m.r.ligtenberg@amsterdamumc.nl.
(b) Department Ethics, Law & Humanities, Amsterdam UMC, Amsterdam, The Netherlands.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1186/s12910-024-01039-7

Preparing popular views for inclusion in a reflective equilibrium: A case study on illness severity.

Fuente:Social Science & Medicine (1982)

Extracto: Our method provides a general framework for refining available data on popular views on moral questions, including when we cannot assess the consideredness of such views.

Claves:Considered judgments, Experimental ethics, Illness severity, Popular views, Priority setting, Reflective equilibrium

Cita:Soc Sci Med 2024 May; 348 : 116794.

Autor/es:Jølstad, Borgar (a)
Stenmarck, Mille Sofie (b)

institución:(a) The Health Services Research Unit-HØKH, Akershus University Hospital HF, Lørenskog, Norway; Centre for Medical Ethics (CME), Institute of Health and Society, Faculty of Medicine, University of Oslo, Norway. Electronic address: borgarjolstad@gmail.com.
(b) The Health Services Research Unit-HØKH, Akershus University Hospital HF, Lørenskog, Norway; Faculty of Medicine, University of Oslo, Norway.

Conflicto:Declaration of competing interest No competing interest.

Formato:Informe impreso

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1016/j.socscimed.2024.116794

Exploration of clinical and ethical issues in an expanded newborn metabolic screening programme: a qualitative interview study of healthcare professionals in Hong Kong.

Fuente:Hong Kong Medical Journal = Xianggang Yi Xue Za Zhi

Tipo de trabajo:Guía

Extracto: This study highlighted healthcare professionals' concerns about the NBSIEM and uncertainties regarding the handling or utilisation of rDBS. Policymakers should consider these concerns when establishing new guidelines.

Claves:Dried blood spot testing, Newborn screening

Cita:Hong Kong Med J 2024 Apr; 30 (2) : 120-129.

Autor/es:Ngan, O M Y (a)
Tam, C J (b)

institución:(a) Medical Ethics and Humanities Unit, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
(b) Centre for Medical Ethics and Law, The University of Hong Kong, Hong Kong SAR, China.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe impreso

Idioma:Inglés

País de fuente:China

Sitio web:http://dx.doi.org/10.12809/hkmj2210234

Public Opinions on Removing Disincentives and Introducing Incentives for Organ Donation: Proposing a European Research Agenda.

Fuente:Transplant International Official Journal of The European Society For Organ Transplantation

Extracto: We conclude by proposing this experiment's framework as a blueprint for European research on this topic.

Claves:disincentives, ethics in transplantation, incentives, organ donation, payments

Cita:Transpl Int 2024; 37 : 12483.

Autor/es:Ambagtsheer, Frederike (a)
Bunnik, Eline (b)

institución:(a) Department of Internal Medicine, Nephrology and Kidney Transplantation, Erasmus MC Transplant Institute, University Medical Center Rotterdam, Rotterdam, Netherlands.
(b) Department of Medical Ethics, Philosophy and History of Medicine, Erasmus Medical Center, Rotterdam, Netherlands.

Conflicto:The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Formato:Informe virtual

Idioma:Inglés

País de fuente:Suiza

Sitio web:http://dx.doi.org/10.3389/ti.2024.12483

Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study.

Fuente:Jmir Research Protocols

Tipo de trabajo:Consenso

Extracto: This study will fill an important research gap in Slovenia by exploring the needs and experiences of people living with rare diseases and their caregivers. The results will contribute to the broader field of rare diseases and add knowledge that can inform future research processes and intervention strategies. It also aims to identify neglected areas that have a significant impact on the lives of people with rare diseases. This study is important not only because it addresses the immediate needs of the Slovenian rare disease community, but also because it contributes to a discussion on patient-centered care, health policy design, and the inclusion of psychosocial components in health care. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/53362.

Claves:access to health care, barriers, caregivers, needs, patients, rare diseases

Cita:JMIR Res Protoc 2024 Apr 22; 13 : e53362.

Autor/es:Černe, Tina (a)
Turk, Eva (b)

institución:(a) Deparment of Family Medicine, Univeristy of Ljubljana, Ljubljana, Slovenia.
(b) Center for Digital Health and Social Innovation, Department of Health Sciences, Univerisity of St. Pölten, St. Pölten, Austria.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Canadá

Sitio web:http://dx.doi.org/10.2196/53362

Stimulating Preconception Care Uptake by Women With a Vulnerable Health Status Through a Mobile Health App (Pregnant Faster): Pilot Feasibility Study.

Fuente:Jmir Human Factors

Extracto: Nudging women through Pregnant Faster to stimulate pregnancy preparation and PCC uptake has proven feasible, but the inclusion criteria must be revised. A substantial number of PCC consultations were conducted, and this study will therefore be continued with an open cohort of 400 women, aiming to establish the (cost-)effectiveness of an updated version, named Pregnant Faster 2. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.2196/45293.

Claves:app, application, chronic stress, health inequality, health literacy, lifestyle, mHealth, mHealth app, mHealth application, mobile health, nudge, nutrition, pilot feasibility study, preconception care, pregnancy, pregnancy preparation, pregnant, pregnant women, risk factor, socioeconomic, socioeconomic status, stress, usability, user, user satisfaction, users, women

Cita:JMIR Hum Factors 2024 Apr 22; 11 : e53614.

Autor/es:Smith, Sharissa M (a)
Bais, Babette (b)

institución:(a) Department of Obstetrics and Gynecology, Erasmus University Medical Center, Rotterdam, Netherlands.
(b) Department of Obstetrics and Gynecology, Erasmus University Medical Center, Rotterdam, Netherlands.

Conflicto:Conflicts of Interest: RST is initiator and developer of the mobile health (mHealth) app Smarter Pregnancy and the ZonMw project “A Loyalty Program to Motivate Vulnerable Women to Engage in Preconception Care: From Voucher to Tablet” (reference number 543003103). Other authors declare that they have no competing interests. The funder had no role in the design of the study, the... the writing of the manuscript, or the decision to publish the protocol.

Formato:Informe virtual

Idioma:Inglés

País de fuente:Canadá

Sitio web:http://dx.doi.org/10.2196/53614

Guidelines for conscientious objection in Spain: a proposal involving prerequisites and protocolized procedure.

Fuente:Philosophy, Ethics, and Humanities in Medicine Pehm

Extracto: We illustrate the real-world utility of the proposed framework through a case discussion in which our guidelines are applied.

Claves:Clinical ethics, Conscientious objection, Decision-making, Professionalism

Cita:Philos Ethics Humanit Med 2024 Apr 24; 19 (1) : 4.

Autor/es:Herreros, Benjamín (a)
Ramnath, Venktesh R (b)

institución:(a) Universidad Europea, Madrid, Spain.
(b) Instituto de Ética Clínica Francisco Vallés, Universidad Europea, Madrid, Spain.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1186/s13010-024-00155-x

The role of mindfulness and resilience in Navy SEAL training.

Fuente:Military Psychology The Official Journal of The Division of Military Psychology, American Psychological Association

Extracto: The results indicate that (1) mindfulness is unrelated to completion, while (2) resilience is positively related to completion, and (3) The results indicate that mindfulness is generally unrelated to completion, while resilience generally predicts completion.

Claves:SEAL training, Selection and assessment, mindfulness, psychological assessment, resilience

Cita:Mil Psychol 2024 May 3; 36 (3) : 286-300.

Autor/es:Ledford, Andrew (a)
Luning, Celeste Raver (b)

institución:(a) Department of Leadership, Ethics, and Law, United States Naval, Arnold, Maryland, USA.
(b) Stockdale Center for Ethical Leadership, United States Naval, Annapolis, Maryland, USA.

Conflicto:No potential conflict of interest was reported by the author(s).

Formato:Informe impreso

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1080/08995605.2022.2062973

Application of Multi-Criteria Decision Analysis (MCDA) to Prioritize Real-World Evidence Studies for Health Technology Management: Outcomes and Lessons Learned by the Canadian Real-World Evidence for Value of Cancer Drugs (CanREValue) Collaboration.

Fuente:Current Oncology (toronto, Ont.)

Extracto: The refined MCDA rating tool can help decision-makers prioritize important and feasible RWE studies for research and can enable the use of RWE for the life-cycle evaluation of cancer drugs.

Claves:decision-analysis, health technology assessment, multi-criteria decision analysis, oncology

Cita:Curr Oncol 2024 Apr 1; 31 (4) : 1876-1898.

Autor/es:Takhar, Pam (a)
Geirnaert, Marc (b)

institución:(a) Ontario Health (Cancer Care Ontario), Toronto, ON M5G 2L3, Canada.
(b) CancerCare Manitoba, Winnipeg, MB R3E 0V9, Canada.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Suiza

Sitio web:http://dx.doi.org/10.3390/curroncol31040141

Telemedicine Utilization Patterns and Implications Amidst COVID-19 Outbreaks in Thailand Under Public Universal Coverage Scheme.

Fuente:Inquiry a Journal of Medical Care Organization, Provision and Financing

Extracto: Strategies need to be developed to reinforced healthcare resources for telemedicine during the surge of outbreaks and sustain the use of telemedicine services for chronic and infectious diseases, regardless of the pandemic, and promote the efficiency of healthcare systems.

Claves:interrupted time series analysis, mental health, non-communicable diseases, pandemics, telemedicine

Cita:Inquiry 2024 Jan-Dec; 61 : 469580241246466.

Autor/es:Zayar, Nyi-Nyi (a)
Kittiratchakool, Nitichen (b)

institución:(a) Health Intervention and Technology Assessment Program, Ministry of Public Health, Nonthaburi, Thailand.
(b) Prince of Songkla University, Hat Yai, Thailand.

Conflicto:Data AvailabilityThe data supporting the findings of this study are not publicly available due to restrictions imposed by the National Health Security Officer (NHSO). Access to the data is subject to permissions and approval from the aforementioned organization. Researchers interested in accessing the data should submit a formal request to the NHSO at saraban@nhso.go.th, indicating the purpose of data use... and any relevant ethical considerations. Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Formato:Informe impreso

Idioma:Inglés

País de fuente:EE.UU.

Sitio web:http://dx.doi.org/10.1177/00469580241246466

Intersectionality as a tool for clinical ethics consultation in mental healthcare.

Fuente:Philosophy, Ethics, and Humanities in Medicine Pehm

Extracto: We argue that intersectionality is a suitable tool to address structural discrimination within clinical ethics consultations and show that it can be practically implemented in two complementary ways: 1) as an analytic approach and 2) as a critical practice.

Claves:Minority groups, Multiple discrimination, Racism, Social justice, Structural discrimination

Cita:Philos Ethics Humanit Med 2024 May 2; 19 (1) : 6.

Autor/es:Faissner, Mirjam (a)
Brünig, Lisa (b)

institución:(a) Department of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany. mirjam.faissner@charite.de.
(b) Institute of the History of Medicine and Ethics in Medicine, Charité - Universitätsmedizin Berlin, Thielallee 71, 14195, Berlin, Germany. mirjam.faissner@charite.de.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe virtual

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1186/s13010-024-00156-w

Assessing the perceived value of a user-led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study.

Fuente:Health Expectations An International Journal of Public Participation in Health Care and Health Policy

Extracto: We conclude that this PS, organized within a psychiatry organization by salaried peers, achieved the same positive results as those reported in the literature and showed the value of having peer-organizers being part of the staff. PATIENT OR PUBLIC CONTRIBUTION: This research was performed in a partnership between academic researchers and persons with user experience of psychiatric services, engaged in the educational intervention in the focus of the study. The research plan was co-designed, and the analysis of the data collected was performed in collaboration. The participation of the co-researchers with user experience gave the project team access to the study site, provided the team with insights into to study context and contributed with an understanding promoting the interpretation of the findings.

Claves:Patient School, Recovery College, coping, educational intervention, empowerment, mental health, stigma reduction

Cita:Health Expect 2024 Jun; 27 (3) : e14064.

Autor/es:Reinius, Maria (a)
Al-Adili, Lina (b)

institución:(a) Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.
(b) Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.

Conflicto:Los autores declaran no tener conflictos de interés con la investigación

Formato:Informe impreso

Idioma:Inglés

País de fuente:Reino Unido

Sitio web:http://dx.doi.org/10.1111/hex.14064